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Emily was only 5 when following a short time of ill health she was diagnosed with Leukaemia.
After the initial shock Emily’s family prepared themselves for the two and a half years of chemotherapy, radiotherapy, blood tests, hospital stays and worry that lay ahead of them.
Emily’s treatment went well - she returned to school and life began to feel a little normal again. However, 7 months after finishing her treatment the family were devastated to hear the awful news that Emily had relapsed. Her only hope now was a bone marrow transplant. Finding a donor did not come easy and at this time the Emily Ash Trust was formed in order to try to find a bone marrow match. Finally, in November 2002 a donor was found and Emily received her transplant on 9th January 2003.
After several anxious days and then weeks, Emily’s transplant was deemed a success and finally the family returned home to begin the rest of their lives…
…Emily is now 23, she is 15 years post transplant and lives in Australia with her family. She has recently graduated from University and the world is now her oyster. Emily remains closely involved with the trust that bears her name. Recently she took on the awesome challenge of a charity sky dive to raise funds! She remains the inspiration for the Trust and we are hugely proud of her.
What people say
“Our son, Joshua was diagnosed with a rare form of liver cancer just before he turned 2. Hepatoblastoma affects around 10 children in the UK every year and unfortunately Josh was one of the unlucky few. We entered into a world we never thought we’d be a part of and had to become experts in a subject we’d never wanted to learn. All manner of tests, scans, and biopsies culminated in Josh starting his first cycle of chemotherapy on the day of his second birthday.
During Josh’s cancer journey we were put in touch with the Emily Ash Trust, and immediately their ethos of “making memories” was something that very much resonated with our family. We attended several Emily Ash Trust events whilst Josh was on treatment, including their amazing winter wonderland. Thankfully Josh responded well, and at the conclusion of his chemo we attended an end of treatment workshop at the Royal Marsden where Emily herself gave a wonderfully inspiring talk to us about her own cancer journey.
Josh continues to go from strength to strength, however less than a year after his treatment ended we received the devastating news that I (his Mum) have Stage 4 Bowel Cancer. Unfortunately the first chemo regimen I was placed on wasn’t effective and my oncologist advised me there had been some disease progression.
It wasn’t long after getting that news that The Emily Ash Trust got in touch with us and asked if we would once again like to attend their annual Winter Wonderland. In need of something to cheer us up we jumped at the chance to do something fun with the boys and make some memories. However, the surprises didn’t stop there! When we met Father Christmas we learned that thanks to the efforts of the wonderful Ginnie and Heidi, Father Christmas had arranged for us to travel all the way to Lapland the following week, to see him again in the grotto at his house. I can’t describe how excited the boys were to be heading off to Lapland, I’ve never seen smiles that big (although our eldest son Archie’s initial response of “but what about school?” did take me by surprise a little!!).
When we arrived at Lapland the scene was so magical, the snow incredible, and the festive excitement off the charts. However never one to shy away from the medical limelight for long, unfortunately Josh was slightly too enthusiastic when trying out tobogganing and ended up with a broken ankle on the day we arrived. You couldn’t make it up! Thankfully despite the time spent in the care of the excellent Finnish health service the trip was still incredible for all of us. Archie and I were able to spend a truly magical day meeting Father Christmas. We were lucky enough to go on a husky ride, a reindeer sleigh ride, as well as making snow angels and eating yummy pancakes! It was such a wonderful experience and we were so grateful to be able to spend time together making memories that will last forever.”
A huge Thank You to the Emily Ash Trust for giving Ethan and our family the most amazing adventure in Wales together.
We had a wonderful, fun, family time. It was an absolutely fantastic, exhilarating experience. I don’t think we have laughed so much in ages! It was such a kind thing you did for us as a family, arranging and funding it all.
We are all extremely grateful to the Emily Ash Trust for lifting our spirits at a difficult time and giving us lovely memories to treasure.